All federal governments need high quality data in order to understand people with disabilities and disability communities. The data will help policy makers identify barriers faced by people with disabilities, design strategic programs that will address these barriers, and evaluate the effectiveness of the policies and programs they initiate.
In January 2025, the Disability Data Interagency Working Group of the President’s Council of Advisors on Science and Technology issued a document titled “Federal Evidence Agenda on Disability.”
People with disabilities and their families are often a neglected demographic during policymaking. There are currently too many evidence gaps to ensure appropriate understanding of people with disabilities and their needs. This document offers ten guidelines to collect the data necessary to ensure that the disability community is adequately represented in the federal decision-making process.
You may want to add this document to your advocacy toolkit. To obtain a 55-page PDF of the document, please contact info at virtualability dot org and request the Federal Evidence Agenda on Disability.
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