Showing posts with label IDRAC-2016. Show all posts
Showing posts with label IDRAC-2016. Show all posts

Thursday, November 17, 2016

IDRAC Spotlight: Meet L’Arche- Saturday, November 19, 8am SLT

The first IDRAC session for Saturday November 19, beginning at 8am Pacific, is an opportunity to “Meet L’Arche.” Begun in France in 1964, L’Arche is now an international network of intentional mixed residential communities for people with and without intellectual disabilities.

Melanie Saxon, Community Leader / Executive Director of L’Arche Jacksonville (FL) will share some of L’Arche’s history and mission through the use of short videos. The facilities of L’Arche Jacksonville include four homes, a community center and the Rainbow Workshop day program.

Ms. Saxon’s previous roles include Executive Director of the North Central Florida Chapter of the American Red Cross, Development Director of University of Florida Performing Arts, Executive Director of Voices for Kids of Southwest Florida and Executive Director of the North Central Florida AIDS Network.

In addition, Ms. Saxon has raised funds for United Way, the Alzheimer’s Association and the Juvenile Diabetes Foundation. She served as Executive Producer of the Florida Film Festival and has coordinated numerous arts in education programs in K-12 schools, along with teaching third grade. Her additional volunteer experience includes serving as a Rotarian, a Stephen Minister, and a Big Sister.

Monday, November 14, 2016

IDRAC Speaker Spotlight: Caroline Pavis

“Engaging and Empowering Online Health Communities”

For the past two years, Janssen (Pharmaceutical Companies of Johnson & Johnson) has hosted HealtheVoices, the first-ever conference focused on bringing together online patient health advocates to help them further grow and engage their online patient communities. Nearly 100 leaders of online patient communities, also known as bloggers or patient opinion leaders, attended the conference in 2016. These advocates represent a wide variety of health conditions and diseases.

On Friday, November 18, the 2016 International Disability Rights Affirmation Conference (IDRAC) will begin with a presentation at 8am Pacific by Caroline Pavis, Communications Leader, Janssen Oncology & Immunology. In her presentation, Ms. Pavis will share highlights of the 2015 and 2016 HealtheVoices conferences, and discuss plans to host a third HealtheVoices on April 21-23, 2017, in Chicago.

Caroline Pavis currently serves as Communications Leader for Janssen Biotech, Inc., a division of Johnson & Johnson, where she oversees integrated public relations and communications initiatives for Janssen’s Oncology and Immunology Business Units. Caroline joined Johnson & Johnson in 2011. Prior to joining Janssen Biotech, Caroline served as Director, Global Communications for Johnson & Johnson Diabetes Care where she led internal and external communications on behalf of the global franchise and served as a member of the Animas Management Board.

With nearly 20 years of public relations and corporate communications experience, Caroline joined Johnson & Johnson from GolinHarris, a global public relations consultancy agency, where she was responsible for overseeing strategic marketing programs for several pharmaceutical, medical device and consumer healthcare companies. Caroline lives in Coopersburg, Pa. with her husband and three kids, where she is adjusting to the quiet country life (and endless yard work) after moving from the big city of Chicago.

International Disability Rights Affirmation Conference (IDRAC)
Friday November 18, 2016 - 8:00am- 3:00pm
Saturday, November 19, 2016 - 8:00am - 1:30pm
Soujourner Auditorium, Virtual Ability Island in Second Life®
http://maps.secondlife.com/secondlife/Virtual%20Ability/54/170/23

Saturday, November 12, 2016

IDRAC Speaker Spotlight: Professor Theresa Lorenzo and Siphokazi Sompeta

Creating Inclusive Communities: The Role of Community Disability Practitioners in Africa

Persons with disabilities and their families still experience stigma and a high degree of social exclusion especially in rural communities, which are often poorly resourced and serviced. Disability-inclusive development requires a workforce equipped with skills to work intersectorally and in a transdisciplinary manner in order to that will promote delivery of services in remote and rural areas. The IDRAC session on Friday at 9:30am Pacific will discuss research on these topics.

Professor Theresa Lorenzo is an occupational therapist and PhD Programme Convenor in the Division of Disability Studies, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences at the University of Cape Town (South Africa). She has extensive experience in engaged scholarship focused on developing a transdisciplinary community-based workforce to facilitate the implementation and monitoring of disability-inclusive development in Africa, with a focus on youth and women. Her Second Life name is Fish Eagle.

Siphokazi Sompeta (née Gcaza) is also an occupational therapist in the Division of Disability Studies, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences at the University of Cape Town. She was the former chair of the Community-based Rehabilitation Africa Network that has advocated for the implementation of inclusive development programmes with a particularly focus on rural communities. Her research has explored chronic poverty of disabled persons in rural areas and the training of community rehabilitation workers. Her second life name is Vulithongo, which means Dream Opener in Isi-Xhosa, her mother tongue.

Together they will present an academic paper that explores the local experiences and practices of community-based disability workers (CDWs) in resource-limited rural communities in Botswana, Malawi and South Africa. It explores CDWs’ activities and strategies to contribute to improving the lives and increasing the levels of social, economic and political inclusion of people with disabilities, their families and communities. They argue that these competencies should be consolidated and strengthened in curricula, training and policy.

Three main themes emerged demonstrating the competencies of CDWs. First, integrated management of health conditions and impairments within a family focus. Second, negotiating for disability-inclusive community development. Third, coordinated and efficient intersectoral management systems.

Be sure to join us for this very informative presentation at the International Disability Rights Affirmation Conference (IDRAC) on Friday, the 18th of November, 9:30 AM Pacific Standard Time.

Friday, November 11, 2016

IDRAC Speaker Spotlight: Dr. Margaret Nosek

“Is your avatar a bulletproof vest?”

Find out the answer to this intriguing question on Saturday, November 19, at 9:30am Pacific. Dr. Margaret Nosek, Professor of Physical Medicine and Rehabilitation at Baylor College of Medicine (Houston, TX, US) and two co-presenters, Stephanie Silveira and Rachel Markley, will describe their work conducting challenging conversations for women with disabilities in virtual worlds. The Center for Research on Women with Disabilities (CROWD) at Baylor has conducted research with women with disabilities on several dicey topics, including sexuality, reproductive health, bladder and bowel management, weight management, and self-esteem. In their presentation, Nosek, Silvera and Markley will talk about feedback women have given them when they discuss some of these topics in Second Life and some of the difficulties and successes they have experienced in trying to make related information available online and in virtual worlds.

In addition to her position at Baylor, Dr. Nosek, PhD, is Senior Scientist at TIRR Memorial Hermann and Adjunct Professor in the College of Nursing at Texas Woman’s University, both in Houston. She researches ways to improve the health of women with physical disabilities, especially by improving reproductive health and access to healthcare services. She has conducted many large studies in Second Life.

Dr. Nosek is a member of the Board of Directors of Virtual Ability, Inc. She is a woman with a severe physical disability, and is a lifelong disability rights activist. She has won many honors both for her academic research and her activism.

Stephanie Silveira is a Graduate Research Assistant at University of Houston Department of Health and Human Performance, Baylor College of Medicine Center for Research on Women with Disabilities (CROWD), and TIRR Memorial Hermann. She is a fourth year doctoral student in kinesiology at the University of Houston with an interest in health promotion for individuals with mobility impairments. Her undergraduate degree is in psychology, where many of her current research interests reside, particularly as related to nutrition and physical activity. She was the project manager for CROWD’s GoWoman virtual reality weight loss intervention for women with mobility impairments. She is currently involved on several projects including a weight loss intervention for men and women with spinal cord injuries and a pilot nutrition and body composition measurement study of former and current heroin users receiving a virtual reality intervention. She led a team in reviewing literature on obesity measurement in people with spinal cord injuries, including an examination of the most accessible and valid ways to measure fat mass, height and weight.

Stephanie has conducted cross-sectional psychological research with wheelchair rugby athletes. She hopes to pursue this area further in order to help individuals with mobility impairments improve their quality of life through physical activity and exercise. She is also personally invested in training adaptive Crossfit athletes. She plans to focus her research career on reducing obesity in populations experiencing health disparities using telehealth and virtual reality interventions.

Rachel Markley, MPH, is a 2015 graduate of the University of Texas School of Public Health. Ms. Markley is a research assistant at the Center for Research on Women with Disabilities at TIRR Memorial Hermann and is involved in studies to develop health promotion interventions and expanded women’s health services for women with physical disabilities. She served as part of the research team for the GoWoman Virtual Reality Weight Management Program for Women with Mobility Impairments, and co-facilitated the development of an Internet-Based Empowerment and Self-Esteem Enhancement Intervention for Women with spinal cord injury, a 7-week intervention held in Second Life. Ms. Markley has significant physical limitations due to Spinal Muscular Atrophy.

Wednesday, November 9, 2016

IDRAC 2016 Speaker Spotlight: Shyla

Shyla is a former storm chaser, outdoor adventurer and comedian who, to pay the bills, developed industry specific solutions and implemented enterprise wide systems for Fortune 500 companies. Shyla is a published author, editor, blogger and poet. She is also a caregiver.

In Second Life, Shyla is a Super Gecko and wears a pink cape to note the distinction. She has never met another Gecko in SL, so there is really no way for her to compare her 'gecko-ness' to any other. However, as far as geckos go, she likes to think she is pretty super. She enjoys customizing, building and texturing in Second Life. She creates theme builds on her Nautilus Island parcel to benefit organizations in Second Life assisting People With Disabilities.

On September 11, 2001, Shyla was enjoying a day off, resting on her sofa when the first news reports of the terrorist attack aired. Shortly thereafter, her co-workers were sent home as a nation began to grieve and much of the world with it. She worked as a business partner with several people in the Towers that day, and remembers the anxiety as she and her staff waited for confirmation they were all okay. Sadly, she would come to know not all of them survived.

She did not see herself as disabled at that time, nor did she consider the context of the stories being conveyed about people with disability who were saved on 9/11. But as the 15th anniversary approached this year, Shyla wanted to learn the story of her community as it related to 9/11. What began as a historical curiosity revealed serious issues about how our stories are told by a predominantly able-bodied media and the inclusion and consideration of PWDs (People With Disabilities) in emergency planning even today. The result is "9/11: The PWD Story".

Tuesday, November 8, 2016

IDRAC Displays on Healthinfo Island

Healthinfo Island is directly west of Virtual Ability island. It houses several facilities related to health and wellness, including displays and exhibits on topics about health and wellness. During Virtual Ability conferences, displays and exhibits provide additional information on topics related to the conference theme.

The theme of the 2016 International Disability Rights Affirmation Conference is “We’re Part of the Community.” Conference attendees will have an opportunity to learn from series of posters in addition to hearing from the presenters. Virtual Ability member Mook Wheeler has created several educational displays and exhibits.

“The L’Arche Story” is a collection of 20 posters explaining the history and mission of L’Arche. Begun in France, l’Arche creates intentional communities worldwide where people with intellectual disabilities live and work alongside other people and share in the community responsibilities. You can learn more about L’Arche here: http://maps.secondlife.com/secondlife/Healthinfo%20Island/199/156/23

Twenty posters tell “The History of the Independent Living Movement.” Ed Roberts is considered the father of the independent living movement in the US, but it is now a worldwide effort to support people with disabilities as they participate in all aspects of the communities in which they are located. This display is found here: http://maps.secondlife.com/secondlife/Healthinfo%20Island/193/184/25

“Why is Community Important to People With Disabilities?” is the topic of a third display. The L’Arche communities exemplify community living for people with intellectual disabilities, and the Independent Living Movement was begun to promote inclusion of persons with severe physical disabilities. Why is inclusion of all persons with any type of disability important to the overall health of a community? Find out here: http://maps.secondlife.com/secondlife/Healthinfo%20Island/173/153/22

Mook also created a smaller exhibit on the topic: “The Role of Organizations for People With Disabilities.” Read about Disabled Peoples’ International, the first international cross-disability organization, and find out about the many roles played by disabled peoples’ organizations at all levels, including in Second Life. This display is here: http://maps.secondlife.com/secondlife/Healthinfo%20Island/50/27/28

An exhibit above the lake on Healthinfo Island contains a poster set that addresses the question: “What Do You Call People With Disabilities?” It discusses what is known as People First Language. Find the answer to that question here: http://maps.secondlife.com/secondlife/Healthinfo%20Island/22/58/32

Additional poster sets will be appearing as we move toward the opening of IDRAC 2016 at 8:00am SLT (US Pacific Standard Time) on Friday, November 18. Be watching for them!

Friday, November 4, 2016

IDRAC 2016 Speaker Spotlight: Dr. Margaret Nosek

Dr. Margaret Nosek and colleagues present Friday, November 18th, 12:30-1:30pm SLT/US Pacific, at Virtual Ability's International Disability Rights Affirmation Conference. They will discuss “Women with mobility impairments in community weight loss programs: Exploring new venues in virtual worlds.”

Women with mobility impairments have two major barriers to maintaining an appropriate weight. Their lack of mobility means that they are at greater risk of becoming obese, and there are no commercial public weight loss programs designed specifically for women with disabilities. The Center for Research on Women with Disabilities (CROWD) at Baylor College of Medicine designed a project to address these barriers.
This presentation will provide information about the prevalence of overweight and obesity among women with disabilities, the difficulties they experience in trying to access community-based weight loss programs, and the pilot study conducted on the GoWoman weight management program for women with mobility impairments in Second Life.

Margaret (Peg) Nosek, PhD, is a Professor in the Department of Physical Medicine and Rehabilitation at Baylor College of Medicine and Senior Scientist at TIRR Memorial Hermann (Houston, TX, US). She is the Executive Director of the Center for Research on Women with Disabilities (CROWD). She holds an additional position as Adjunct Professor in the College of Nursing at Texas Woman’s University, Houston. Her doctorate is in rehabilitation research from the University of Texas at Austin.

Dr. Nosek’s main research interest is on improving the health of women with physical disabilities, especially developing interventions disparities in reproductive health and access to healthcare services. She has conducted many large funded studies, several of which have taken place in Second Life. She is the author of numerous publications and the recipient of several prestigious awards, from organizations such as the American College of Physical Medicine and the Rehabilitation Psychology Division of the American Psychological Association.

Dr. Nosek lives with spinal muscular atrophy, a severe congenital physical disability, and is a disability rights activist. She has worked closely with Justin Dart and others in the independent living movement. She has been honored as a “Disability Patriot” by the President’s Committee on Employment of People with Disabilities.

International Disability Rights Affirmation Conference (IDRAC)
November 18 & 19, 2016
The Sojourner Auditorium, Virtual Ability, Second Life®

IDRAC is an annual professional conference which celebrates progress and the future of the disability rights movement in the United States and across the world. It is free and open to the public, hosted by Virtual Ability in Second Life®. A full schedule of the conference presentations will be released when it is finalised.

Thursday, November 3, 2016

IDRAC 2016 Speaker Spotlight: DPCMA

Maggie Sheets presents Friday, November 18th, 2-3pm SLT/US Pacific, at Virtual Ability's International Disability Rights Affirmation Conference.

Maggie Sheets, Research Assistant and Healthcare Advocate with the Disability Policy Consortium of Massachusetts (DPCMA) will present “The Disability Policy Consortium’s Second Life project” on Friday, November 18, at 2pm in Virtual Ability’s Sojourner Auditorium. Her presentation is part of the 2016 International Disability Rights Affirmation Conference. Her avatar's name is MaggieDPCMA.

This presentation will give a brief background on the history and activities of the Disability Policy Consortium (DPC) along with Maggie’s work with the organization. An introduction will be given regarding the DPC’s plans for a project in Second Life. This project will involve women ages 21-40 who have disabilities in a discussion group to talk about dating, relationships, sex, reproductive health, and any other topics of interest to the group. The goal of this group in Second Life is to give these women a space to discuss these issues freely with each other.

Maggie has worked at the Disability Policy Consortium in Malden (Massachusetts, US) since July of 2014. Most recently, Maggie has conducted research and has written four issue briefs on topics of concern to people with disabilities. These include: access to SNAP benefits, access to affordable housing, domestic abuse faced by people with disabilities, and issues people with disabilities who age-out of the educational system at age 22 confront. She has also been providing technical support to a research team examining the healthcare experiences of One Care (health insurance program) enrollees. She is also creating a resource guide with contacts and information to help people with disabilities who are experiencing violence.

In the past, Maggie managed all logistics for five discussion groups with MassHealth enrollees to learn more about their healthcare experiences. Results from a discussion group involving homeless individuals with disabilities will be submitted for publication in the Disability and Health Journal. She also conducted outreach to college students with disabilities to encourage them to become more involved in disability advocacy.

Prior to working with the Disability Policy Consortium, Maggie worked as a Program Associate with Community Catalyst providing technical assistance to a research team examining conflict of interest issues in medical education. Maggie holds a Master’s Degree in Health Communication from a program from Emerson College in collaboration with Tufts University School of Medicine. Her personal motto is: Everything will be all right in the end and if it is not all right it is not yet the end.

International Disability Rights Affirmation Conference (IDRAC)
November 18 & 19, 2016
The Sojourner Auditorium, Virtual Ability, Second Life®

IDRAC is an annual professional conference which celebrates progress and the future of the disability rights movement in the United States and across the world. It is free and open to the public, hosted by Virtual Ability in Second Life®. A full schedule of the conference presentations will be released when it is finalised.

Monday, October 31, 2016

IDRAC - Save the Dates: November 18-19, 2016

You are invited to the 2016 International Disability Rights Affirmation Conference (IDRAC), sponsored by Virtual Ability®,Inc. This international conference will be held in Second Life®.


The theme for 2016 is "We’re Part of the Community.”

Join colleagues, friends, and community members for a variety of presentations! Presenters from Canada, South Africa, and the U.S. will join us at The Sojourner Auditorium on Virtual Ability Island within Second Life.

Why don’t you join us, too?

Keep your eyes on this blog for more information!

International Disability Rights Affirmation Conference (IDRAC)
Friday November 18, 2016 - 8:00am- 3:00pm
Saturday, November 19, 2016 - 8:00am - 1:30pm
Soujourner Auditorium, Virtual Ability Island in Second Life®
http://maps.secondlife.com/secondlife/Virtual%20Ability/54/170/23